论文标题
还有我们的泥土蛋糕并吃掉它：评估用户对使用区块链技术进行私人和安全健康数据管理和共享的反应
Having our omic cake and eating it too: Evaluating User Response to using Blockchain Technology for Private & Secure Health Data Management and Sharing
论文作者
论文摘要
本文报告了针对私人和安全的单个OMICS健康数据管理和共享的原型区块链解决方案的开发和评估。该解决方案是一个多学科项目的输出，该项目研究了在个性化医疗研究中，围绕区块链技术应用的社会，数据和技术问题。该项目研究自我主张的医疗保健数据管理和共享的潜在道德，法律，社会和认知限制，以及是否可以通过仔细的区块链解决方案的用户界面设计来解决此类限制。
This paper reports on the development and evaluation of a prototype blockchain solution for private and secure individual omics health data management and sharing. This solution is one output of a multidisciplinary project investigating the social, data and technical issues surrounding application of blockchain technology in the context of personalized healthcare research. The project studies potential ethical, legal, social and cognitive constraints of self-sovereign healthcare data management and sharing, and whether such constraints can be addressed through careful user interface design of a blockchain solution.
